Day -9

Last night went great! We can't get her to bed before 9 because she's due for meds around 8 but that's right around nurse shift change. So by the time they get handed off, we handle the medicine and do her mouth care, it's 9. But despite that she slept through the night, through all the vital checks and a diaper change (thanks nurses!) and woke around 7:45, even after the nursing hand off and check.

She's been in great spirits, got to check out the play room this morning, had some visitors (all her grandparents and Ainsley!) and is a happy clam. Though she hasn't napped yet. Only my kid would plow through Benadryl and ATG and stay awake. I wasn't kidding when I complain about our sleep problems! Baby #3 better take after me and love to sleep :-) (note: she finally crashed for an hour and a half at 4).

We have a little hiccup and the cuff that is inside her chest for her central line has been pulled out slightly. It's so hard to manage a little one and all of those tubes.  She is constantly climbing onto the chair through the arm then trying to climb out the opposite side and I'm afraid that's what did it. But it's so impossible to be on her every second of the day.

So they took an x-ray (a portable machine that they brought right to her room! Being in-patient has it's perks :-) ) and confirmed that everything is still in place but it might mean they need to redo her line sometime next week. More anesthesia, more chemicals in her little body....but they seem confident that this is minor and that all will continue on schedule.

***

After a long day of visiting with our wonderful families we are having a quiet evening while Selene eats some dinner. Then it's bath, evening medicine routine and hopefully bed for everyone! I thought we'd stay up and watch tons of House of Cards but we can't keep our eyes open after we get her into bed!

Here's to hoping for a relaxing, healthy Sunday before the intense Chemo starts tomorrow night.

Going for an x-ray to make sure her bones are healthy.

This beautiful balloon was delivered by some sweet friends! She loves "my balloon."

Sound night of sleep, dozing in the sunlight as I stare at her gorgeous face.

Needless to say she missed a few spots.

Getting used to her mask since she needs to wear it to leave her room.

Checking out the playroom. 

Shredding a package of wipes. Dan wanted me to stop her, I figured Aetna could take the hit 

Lunch time

Got a chance to grab some coffee and take a walk with Dan

"I take picture."

The girls were so excited to see each other!

I just missed Ainsley reaching in to hold her hand after she woke from her nap.

Eating all the kale garnish from her plate, her mother's daughter.